Politics

/

ArcaMax

Commentary: Stop waiting, start building -- A national call to modernize health care

Amy Gleason, Los Angeles Times on

Published in Op Eds

In nearly every part of modern life, technology works for us. You can check in for a flight with your phone, track your heart rate in real time or get personalized grocery suggestions based on your habits.

But when it comes to managing your health? You’re often stuck printing records, repeating your medical history at every new appointment and filling out the same forms again and again. That’s not just frustrating; it’s dangerously unacceptable.

Leaders from across health care and technology recently gathered at the White House with a shared purpose: to fix what’s broken in health tech and to build what works. This wasn’t just a showcase, it was a signal. It’s time to stop waiting and time to start building.

I know what’s at stake because I’ve lived it. My daughter Morgan has a rare disease. She sees 12 doctors and takes 21 medications. For more than a decade, she’s navigated a maze of disconnected systems, repeated paperwork and inconsistent records. In between short appointments every few months, she gets almost no daily feedback — no smart tools to help manage her symptoms, no tailored advice, no real-time coordination across providers.

Her smartwatch encourages movement, but it doesn’t know that Morgan lives with a debilitating condition. It doesn’t help her decide when to rest instead of pushing through, or when to take one of her as-needed medications. She doesn’t get the same personalized, intuitive feedback we expect in almost every other part of life. And she should.

Recently, Morgan uploaded her medical records into an AI assistant, just to see what it would say. What it found stunned us: a subtle but critical discrepancy in her diagnoses that could make her eligible for a clinical trial — a trial that could offer the first real hope we’ve had in more than 15 years.

That’s the promise of connected data and smart tools when they work. But right now, they mostly don’t. The federal government has made major investments in digitizing health care. But digitization alone isn’t enough.

The Centers for Medicare & Medicaid Services, under the leadership of Dr. Mehmet Oz, has focused on building the foundational infrastructure the private sector needs to innovate. That includes collaboration with the U.S. DOGE Service to finally create a long-overdue national provider directory — a digital map for health care — so systems can talk to each other in real time and so patients can receive connected care.

Right now, there’s no single, trusted source of up-to-date information about providers — where they practice, what specialties they offer, or how to connect to them. Every health insurance plan requires providers to submit the same information separately, often dozens of times across different networks. The result? More than $2.7 billion in wasted administrative effort each year, according to the Council for Affordable Quality Healthcare. And without knowing where or how to send data that other providers need, medical offices can’t share it. A smart provider directory is the first step to fixing that.

We’re also modernizing how Medicare and Medicaid data are shared, with security and privacy built into every step. And we are clearing the path for tools that help patients manage care with confidence — tools that feel as seamless, smart and human as the apps we already trust in our daily lives. And here’s what’s important: This is not a federal database of patient health information. It is a network of providers, with patient privacy, consent and transparency built in from the start. Individuals remain in control of their data, deciding when, how and with whom it is shared.

 

But the federal government can’t do this alone. The apps and services that turn raw data into information for daily decisions must come from the private sector: clinicians, developers, caregivers and startups.

That is why this effort matters. We’re not only asking for ideas. We’re also asking for action. We’re asking companies to make real commitments — to kill the clipboard and build secure data-sharing networks. To develop tools that deliver real outcomes and give people a health care experience that’s finally as smart, seamless and personalized as the consumer products in their lives.

Imagine scanning a QR code at your doctor’s office and instantly sharing your health history, like scanning your boarding pass before a flight. Imagine having an AI assistant that knows your care plan and helps you manage risks, flare-ups, medications and appointments. Imagine getting informed responses to your worries 24/7 wherever you are. That’s not science fiction. That’s what health care can and should look like.

We’ve waited long enough. Let’s stop accepting what’s broken and start building what works. The right data at the right time can mean the difference between confusion and clarity, decline and healing, loss and hope. Let’s stop faxing and let’s kill the clipboard.

The time is now. Are you in? Join the movement at http://cms.gov/health-tech-ecosystem.

____

Amy Gleason is a strategic advisor to the Department of Health and Human Services and the Centers for Medicare & Medicaid Services. She is also the acting administrator of the U.S. DOGE Service.

_____


©2025 Los Angeles Times. Visit at latimes.com. Distributed by Tribune Content Agency, LLC.

 

Comments

blog comments powered by Disqus

 

Related Channels

The ACLU

ACLU

By The ACLU
Amy Goodman

Amy Goodman

By Amy Goodman
Armstrong Williams

Armstrong Williams

By Armstrong Williams
Austin Bay

Austin Bay

By Austin Bay
Ben Shapiro

Ben Shapiro

By Ben Shapiro
Betsy McCaughey

Betsy McCaughey

By Betsy McCaughey
Bill Press

Bill Press

By Bill Press
Bonnie Jean Feldkamp

Bonnie Jean Feldkamp

By Bonnie Jean Feldkamp
Cal Thomas

Cal Thomas

By Cal Thomas
Christine Flowers

Christine Flowers

By Christine Flowers
Clarence Page

Clarence Page

By Clarence Page
Danny Tyree

Danny Tyree

By Danny Tyree
David Harsanyi

David Harsanyi

By David Harsanyi
Debra Saunders

Debra Saunders

By Debra Saunders
Dennis Prager

Dennis Prager

By Dennis Prager
Dick Polman

Dick Polman

By Dick Polman
Erick Erickson

Erick Erickson

By Erick Erickson
Froma Harrop

Froma Harrop

By Froma Harrop
Jacob Sullum

Jacob Sullum

By Jacob Sullum
Jamie Stiehm

Jamie Stiehm

By Jamie Stiehm
Jeff Robbins

Jeff Robbins

By Jeff Robbins
Jessica Johnson

Jessica Johnson

By Jessica Johnson
Jim Hightower

Jim Hightower

By Jim Hightower
Joe Conason

Joe Conason

By Joe Conason
Joe Guzzardi

Joe Guzzardi

By Joe Guzzardi
John Stossel

John Stossel

By John Stossel
Josh Hammer

Josh Hammer

By Josh Hammer
Judge Andrew P. Napolitano

Judge Andrew Napolitano

By Judge Andrew P. Napolitano
Laura Hollis

Laura Hollis

By Laura Hollis
Marc Munroe Dion

Marc Munroe Dion

By Marc Munroe Dion
Michael Barone

Michael Barone

By Michael Barone
Mona Charen

Mona Charen

By Mona Charen
Rachel Marsden

Rachel Marsden

By Rachel Marsden
Rich Lowry

Rich Lowry

By Rich Lowry
Robert B. Reich

Robert B. Reich

By Robert B. Reich
Ruben Navarrett Jr.

Ruben Navarrett Jr

By Ruben Navarrett Jr.
Ruth Marcus

Ruth Marcus

By Ruth Marcus
S.E. Cupp

S.E. Cupp

By S.E. Cupp
Salena Zito

Salena Zito

By Salena Zito
Star Parker

Star Parker

By Star Parker
Stephen Moore

Stephen Moore

By Stephen Moore
Susan Estrich

Susan Estrich

By Susan Estrich
Ted Rall

Ted Rall

By Ted Rall
Terence P. Jeffrey

Terence P. Jeffrey

By Terence P. Jeffrey
Tim Graham

Tim Graham

By Tim Graham
Tom Purcell

Tom Purcell

By Tom Purcell
Veronique de Rugy

Veronique de Rugy

By Veronique de Rugy
Victor Joecks

Victor Joecks

By Victor Joecks
Wayne Allyn Root

Wayne Allyn Root

By Wayne Allyn Root

Comics

Lisa Benson Joel Pett Christopher Weyant Pedro X. Molina Clay Bennett Jeff Koterba